February 2011
1 post
The Butterfly Disease
Have you ever suffered such a severe burn that you developed a blister? Can you imagine what it would feel like if you had those same type of blisters all over your body? That’s exactly how it feels living with epidermolysis bullosa (EB) a rare genetic skin condition which causes severe blisters externally as well as internally. Sometimes EB is referred to as the butterfly disease because it...
January 2011
7 posts
DEBRA →
See you at the Finish Line →
High school cross-country: Fragile infant grows... →
EB Awareness
For my senior project I am promoting Epidermolysis Bullosa (EB) Awareness. I am selling t-shirts for $10, available in Adult sizes small, medium, large, and X large. Colors include blue and green. Youth sizes are also available in sizes x small, small, medium, large, and x large in colors blue, green, or pink. All profits will go to DEBRA (Dystrophic Epidermolysis Bullosa Research Association of...
